4. Sep, 2016

a recap of our journey!



life was our biggest challenge with the birth of our child with Trisomy 18. We did not know anything about it and the professionals gave us very little help or assistance as they too were not used to a child surviving. So how did we cope?  We embraced each day, had lots of hugs, cuddles and made memories to treasure.  We made it home and celebrated several birthdays - the first year each month had a birthday celebration. Each tiny wee milestone was a miracle that we treasured and still do. We had many frightening events - turning blue - vomiting - and several trips in a rush to hospital where they did not understand or know what to do - so once stabilised we would return home. Issues covered sunlight, feeding, sleeping, and communication. Caregivers were scared to provide care unsupported, and could not attend if they were unwell - due to poor immunity. The youngest of 6 children we had our work cut out.  What we were taught was very valuable -  love and laughter and making memories we still treasure today.  We had 9 years 7 months with our precious child and have no regrets as somehow we were given the strength and knowledge of what we needed to do. We learnt so much about what is important in life.