18. Sep, 2014
item of interest
this photo is of a booklet I had re all areas / challenges of Trisomy 18 - unsure if you can still get it - certainly full of information
5. Aug, 2014
photos added today
🙂I came across some photos of our wee girl having fun so have put them together under the title photo album. She loved doing things - having fun and we enjoyed her happy giggles.
I hope you enjoy the photos as I feel that they do show how much Melissa enjoyed her short life......
it took a lot of caring people to provide the care and support she required and looking back I feel and know we were truely blessed.
30. Jun, 2014
supporting encouraging and sharing
yes we are all trying to share what we have learnt caring for our children and we all do it in a different way i.e. sharing through our story Living
with Trisomy 18 / Edwards Syndrome was my way and below is another way - the below event is from America
and yes Melissa's name has been on Krissy's pushchair
in past events!
Running with Krissy team needs your help.Share our story and help use reach new people so we can raise the last needed funds for Krissy's push chair. If you are willing to help please send us a message.
22. Jun, 2014
holiday of a lifetime
I have been away - my apologies re no updates. Have just returned from an amazing trip - Sydney, Dubai, Barcelona, Valencia, Paris, Venice and Rome, Dubai to Sydney returning home to NZ. Just an amazing experience and all thanks to the persistence of my son - a goal to fulfill my childhood dream of going to Spain. I can never thank him enough. An experience of a lifetime with wonderful memories. Photograph is of Venice.
28. Apr, 2014
28 04 2014 Happy Birthday
🙂 Happy Birthday to our amazing wee girl who taught me so much about life. Melissa you are remembered and treasured every day and you will never be forgotten. Many people shared a part of our journey and remember your giggle and the fun times.
Celebrating your birthday with our love always x x 🙂